Supporting Us

We have been astounded at the variety of imaginative ways our friends have found to raise funds for Charcot-Marie-Tooth UK; we are grateful to each and every one – without you, we would cease to exist. Thank you We all have a dream for the future of CMTUK – perhaps it’ll be funding a cure or treatment; perhaps in funding better treatment NOW, whilst that elusive cure is found; perhaps it’s funding care advisers to help with day to day living problems – whatever those dreams are, they need funds.

To give you an idea of the costs we incur, year in, year out – Each information pack that we send costs approximately £8.00 to produce and post.

Every day that there is someone in the office, it costs around £180 in rent and salaries (we are all part time, so that is averaged over five days per week). And that doesn’t include all the overheads, like electricity/telephone/rates etc!

Every mailing of ComMenT costs over £1,000 in postage/packaging, and £1,700 to design and print (and we do that three times per year) Every young adult attending the Young People’s Weekend costs approximately £500 each. Every Conference costs a minimum of £5,000 (and usually a lot more, although some of that is offset by what people pay to attend).

For personal fundraising support, email here or phone 01202 474203