Welcome

CMTUK is the UK charity dedicated to supporting people living with Charcot-Marie-Tooth disease, the most common inherited neurological condition in the world, estimated to affect 4 in 10,000 people and related conditions (including HNPP and GAN).

We provide support, advice and information through; our help-line, email, Support Groups, Facebook groups/page, website and publications, including a magazine (ComMenT) for members.

CMTUK is registered as a charity in England and Wales, registration number: 1112370.

Merchandise

Raise awareness and support us by purchasing CMTUK merchandise.

CMT Kids and Big Kids

CMT Kids runs events for children (age 11 – 17) with CMT.

CMT Big Kids for young adults (age 18-30)

Become a member

Join our growing membership and support CMTUK.

Help fund CMT events, charity days and vital research.

Donate Today

Hampshire & Sussex Support Group Meet Up!

22/07/25

Uncategorised

Edyta Orzol-Bol

Hampshire & Sussex Support Group Meet Up!

Dear Member, Join us for our upcoming CMTUK Regional Support Group meeting — a welcoming space to meet others, share […]

Augustine Therapeutics Doses First Patient in CMT Clinical Trial of AGT-100216

11/06/25

Uncategorised

Edyta Orzol-Bol

Augustine Therapeutics Doses First Patient in CMT Clinical Trial of AGT-100216

Augustine Therapeutics announces first patient dosed in Phase I clinical trial evaluating lead candidate AGT-100216 for the treatment of Charcot-Marie-Tooth […]