SENSE TRIAL – HSN1
ONLINE PATIENT INFORMATION DAY (VIA MICROSOFT TEAMS)
SENSE TRIAL – Hereditary Sensory Neuropathy type 1
Published on behalf of Dr Caroline Kramarz
Tuesday 18th April 2023
3-5pm
ONLINE PATIENT INFORMATION DAY (VIA MICROSOFT TEAMS)
SENSE TRIAL
We are contacting individuals who have been diagnosed with hereditary sensory neuropathy type 1 (HSN1) which is due to a mutation in either the SPTLC1 or SPTLC2 gene.
We would like to inform you that we are starting a clinical research drug trial at the National Hospital for Neurology & Neurosurgery, London UK. We are specifically investigating a possible treatment for HSN1 called L-serine. This will be called the SENSE trial (Hereditary Sensory Neuropathy Serine trial).
We hope that the trial will help us to understand whether L-serine is effective in reducing progression of HSN1.
We would like to invite you to attend an online patient information day where further details about the trial will be provided and you will have the opportunity to ask the research team any questions.
The meeting will be chaired by Professor Mary M Reilly and Dr Matilde Laura who will be leading the trial.
This meeting will be held online on 18th April 2023 3-5pm via Microsoft Teams
Information to Register
Please contact:
Dr Caroline Kramarz: caroline.kramarz@nhs.net
For any other queries, please contact:
Ms Maria Brezitski, Trial Coordinator: maria.brezitski@nhs.net