Mystery illness made me look like a drunk
THROUGHOUT his childhood Colin Tyrie was always falling over, ripping his trousers, grazing his knees or spraining his ankles. Most […]
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THROUGHOUT his childhood Colin Tyrie was always falling over, ripping his trousers, grazing his knees or spraining his ankles. Most […]
Continue ReadingINSPIRED by her brave loved ones, a Sale swimmer has taken the plunge to raise money for a charity which […]
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Muswell Hill campaigner making film to raise awareness of rare disease Doug Sager (centre) with volunteers taking part in the […]
Continue ReadingBioPontis Alliance for Rare Diseases today announces receipt of a large three year donation from the prestigious Baillet Latour Fund […]
Continue ReadingImportant implications for experimental trials in Neuromuscular Diseases 9 November 2015 – http://www.ucl.ac.uk/ion/articles/news/20151106 A UCL Institute of Neurology study published […]
Continue ReadingA determined teenager from Saffron Walden is defying a rare, inherited neurological disease by taking part in 10 triathlons this […]
Continue ReadingLast Updated: Monday 18th September, 2017