Michela takes the plunge for brighter future for her loved ones
INSPIRED by her brave loved ones, a Sale swimmer has taken the plunge to raise money for a charity which […]
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INSPIRED by her brave loved ones, a Sale swimmer has taken the plunge to raise money for a charity which […]
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Muswell Hill campaigner making film to raise awareness of rare disease Doug Sager (centre) with volunteers taking part in the […]
Continue ReadingBioPontis Alliance for Rare Diseases today announces receipt of a large three year donation from the prestigious Baillet Latour Fund […]
Continue ReadingImportant implications for experimental trials in Neuromuscular Diseases 9 November 2015 – http://www.ucl.ac.uk/ion/articles/news/20151106 A UCL Institute of Neurology study published […]
Continue ReadingA determined teenager from Saffron Walden is defying a rare, inherited neurological disease by taking part in 10 triathlons this […]
Continue ReadingA KINCARDINE mum who was diagnosed with the rare Charcot-Marie-Tooth disease is raising awareness of the incurable condition. Susan Wallace, […]
Continue ReadingA student achieved a lifelong dream this week when he began his course at the University of East Anglia despite […]
Continue ReadingA mum is facing her ‘worst nightmare’ as she worries the disease which has blighted her life may have been […]
Continue ReadingA RARE neurological disease means former plasterer Colin Williams has slowly had to change his lifestyle. But the 54-year-old wants […]
Continue ReadingA determined woman with a rare neurological condition has battled against the odds to succeed personally and professionally. Reporter Freya […]
Continue ReadingLast Updated: Friday 15th September, 2017