Support

We provide support for young people living with CMT.

There is an active CMT Kids Facebook page – Email Karin to request access: Karin

If you’re feeling down…

Having CMT and being young as well is really, really tough, and sometimes, you might need a little bit of extra support to assist you through your problems.

These organisations below all provide support to people under 18.

Samaritans

Anyone can contact Samaritans. They offer a safe place for you to talk any time you like, in your own way, no matter how old you are.
116 123

SupportLine

SupportLine offers confidential emotional support to children and young adults by telephone, email and post. They can also give you details of counsellors, agencies and support groups throughout the UK.
01708 765200

The Mix – essential support for under 25s

The Mix is there for you to talk to online, on social media or on their free, confidential helpline. The UK’s leading support service for young people.
0808 808 4994

National Youth Advocacy Service (NYAS)

NYAS is a rights-based charity operating across England and Wales for children, young people and adults. They offer a variety of services including a national advocacy helpline, and advocacy for children and young people with disabilities.

0808 808 1001

Childline

Childline is a free, private and confidential service for anyone under 19 in the UK. You can talk to their trained counsellors about any issue you’re going through, anytime. On the phone, by email, or face-to-face – whatever feels best for you.

0800 1111

Scope helpline

Scope provides free, independent and impartial information and support on issues that matter to disabled people and their families.

0808 800 3333

Contact Charcot-Marie-Tooth UK today

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Last Updated: Thursday 13th March, 2025