CMT Kids & Big Kids
Who are CMT Kids?
Our CMT Kids (ages 11–17) and Big Kids (ages 18–30) communities are all about connection, fun, and empowerment. Whether you’re navigating school, exams, friendships, sports, or adult life with CMT, you’re never alone.
We provide a safe space to share experiences, ask questions, and celebrate achievements together. Through events, online groups, challenges, and our annual activity weekends, we help young people and young adults feel supported, inspired, and connected to others who truly understand.
Whether you’re 5, 25, or somewhere in between, CMT Kids is a place where you’ll find friendship, support, and loads of fun.
Follow us on social media @CMTKidsUK for updates, inspiration, and community stories.
Big Kids (18-30s)
Growing up with CMT?
Our Big Kids group is for young adults navigating uni, jobs, relationships, and independence – all with CMT in the mix.
We meet up, share experiences, and (most importantly) have a great time together!
What We Do
Accessible Activity Weekends and Day Trips
Climbing, canoeing, zip-lining, and more, all adapted so you can join in the adventure. Keep an eye out for our day trips across the UK, suitable for the whole family.
Online Meetups
Chat, share experiences, and connect with other young people who understand
Information and Advice
From tips on living with CMT to just having a laugh with mates, we’re here for you.
We know that young people with CMT often rely on a network of parents, carers, and teachers. Our support section includes resources and guidance to help them understand and manage CMT effectively.
Support for Parents
Advice on daily life, managing appointments, navigating benefits, and emotional support.
Support for Carers
Guidance on caring for someone with CMT, managing mobility needs, and staying informed about new treatments or research.
Support for Teachers
Tips and tools for adapting lessons, supporting physical needs, and creating an inclusive learning environment.
CMT Kids UK
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As CMT Awareness Month comes to a close, we just want to say a huge THANK YOU to everyone who’s helped shine a light on Charcot-Marie-Tooth disease this October!![]()
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From sharing posts, fundraising, and telling your stories - you’ve made a real difference 💪![]()
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But whilst the month may be ending, awareness can’t stop here...![]()
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People living with CMT need understanding, research, and support all year round! ![]()
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Let’s keep the conversations going - because together, we can make sure no one faces CMT alone 💙![]()
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Find out more and stay involved: cmt.org.uk![]()
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#cmtawarenessmonth #cmtuk #charcotmarietooth #disabilityawareness #morethanyoucansee
Meet Emma Lines...![]()
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A model, trailblazer, and someone who’s living boldly with Charcot‑Marie‑Tooth disease![]()
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From feeling the need to hide her CMT as a teen to embracing it as part of who she is today, Emma shows us that confidence and representation matter![]()
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“Our disability is just one part of us... but it makes us who we are” 💙![]()
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This CMT Awareness Month, we’re celebrating stories like Emma’s - because there's always #morethanyoucansee![]()
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Check out our blog to read the full story - ow.ly/ZgQ950XjLVh![]()
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#cmtuk #cmtawarenessmonth #charcotmarietooth
The hardest part of any CMT Kids Weekend!![]()
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Who’s looking forward to being back together in November? 🙋![]()
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#CMTUK #cmtkids #charcotmarietooth #traitors
Discover more
About CMTUK
Discover who we are, what CMTUK stands for, and how we support people living with Charcot-Marie-Tooth across the UK.
Research
Explore the latest CMT research, clinical trials, and how we’re driving progress toward better treatments and understanding.
Members
Join our community for access to resources, support networks, events, and exclusive member benefits — all on a donation basis.
Your support keeps CMTUK going
CMTUK is a donation-based charity. We don’t receive government funding – everything we do is made possible thanks to the generosity of our community. Every pound helps us provide vital support, raise awareness, and fund research for people living with Charcot-Marie-Tooth disease.