CMT Kids & Big Kids
Who are CMT Kids?
Our CMT Kids (ages 11–17) and Big Kids (ages 18–30) communities are all about connection, fun, and empowerment. Whether you’re navigating school, exams, friendships, sports, or adult life with CMT, you’re never alone.
We provide a safe space to share experiences, ask questions, and celebrate achievements together. Through events, online groups, challenges, and our annual activity weekends, we help young people and young adults feel supported, inspired, and connected to others who truly understand.
Whether you’re 5, 25, or somewhere in between, CMT Kids is a place where you’ll find friendship, support, and loads of fun.
Follow us on social media @CMTKidsUK for updates, inspiration, and community stories.
Big Kids (18-30s)
Growing up with CMT?
Our Big Kids group is for young adults navigating uni, jobs, relationships, and independence – all with CMT in the mix.
We meet up, share experiences, and (most importantly) have a great time together!
What We Do
Accessible Activity Weekends and Day Trips
Climbing, canoeing, zip-lining, and more, all adapted so you can join in the adventure. Keep an eye out for our day trips across the UK, suitable for the whole family.
Online Meetups
Chat, share experiences, and connect with other young people who understand
Information and Advice
From tips on living with CMT to just having a laugh with mates, we’re here for you.
We know that young people with CMT often rely on a network of parents, carers, and teachers. Our support section includes resources and guidance to help them understand and manage CMT effectively.
Support for Parents
Advice on daily life, managing appointments, navigating benefits, and emotional support.
Support for Carers
Guidance on caring for someone with CMT, managing mobility needs, and staying informed about new treatments or research.
Support for Teachers
Tips and tools for adapting lessons, supporting physical needs, and creating an inclusive learning environment.
CMT Kids UK
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There are still a few places left for our 2026 CMT Kids Weekend 🎉![]()
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Join us for an incredible activity weekend packed with adventure, friendship, laughter and unforgettable memories! Siblings are welcome too!![]()
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📍 Bendrigg Trust, Lake District![]()
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📅 Friday 23rd October (from 4pm) to Monday 26th October (10am)![]()
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👥 11–17 year olds![]()
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💷 The full cost of the weekend is around £500 per person, but thanks to the incredible support of our fundraisers, we’re able to heavily subsidise the event and ask for a minimum donation of just £100 per attendee![]()
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Your payment includes:![]()
✅ Three nights' accommodation![]()
✅ All meals throughout the weekend![]()
✅ All activities and instructors![]()
✅ All equipment required![]()
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Places are allocated on a first-come, first-served basis and we expect demand to be high, so don't wait too long to secure your place![]()
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Email cmtkids@cmt.org.uk or drop us a message for the registration form and we'll send it over 👀![]()
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If cost is a concern, please get in touch with us in confidence - we never want finances to be a barrier to attending and payment plans are available![]()
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We can't wait to see you there! Let us know if you have any questions 🙌![]()
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#charcotmarietoothdisease #activityweekend #cmtuk #cmtkids
It’s July, which means it’s Disability Pride Month 💙![]()
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This month is a chance to celebrate our community and recognise everything our CMT Kids and Big Kids achieve every day!![]()
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If you're a young person with CMT, or you're a friend, sibling, parent or carer looking to connect with others, we're here for you![]()
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💬 Join our private Facebook groups:![]()
www.facebook.com/groups/1757471168200538/![]()
www.facebook.com/groups/983604400521372/![]()
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🌐 Find out more about CMT Kids:![]()
www.cmt.org.uk/cmt-kids/![]()
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#disabilitypridemonth #cmtuk #charcotmarietooth #cmtkids
🚨 BOOKING IS NOW OPEN 🚨![]()
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The wait is over! Registration for our CMT Kids Weekend 2026 is now live 🎉![]()
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Join us for an incredible weekend packed with adventure, friendship, laughter and unforgettable memories!![]()
![]()
📍 Bendrigg Trust, Lake District![]()
![]()
📅 Friday 23rd October (from 4pm) to Monday 26th October (10am)![]()
![]()
👥 11–17 year olds![]()
![]()
💷 The full cost of the weekend is around £500 per person, but thanks to the incredible support of our fundraisers, we’re able to heavily subsidise the event and ask for a minimum donation of just £100 per attendee![]()
![]()
Your payment includes:![]()
✅ Three nights' accommodation![]()
✅ All meals throughout the weekend![]()
✅ All activities and instructors![]()
✅ All equipment required![]()
![]()
Places are allocated on a first-come, first-served basis and we expect demand to be high, so don't wait too long to secure your place![]()
![]()
📧 Check your emails for the registration form, or drop us a message and we'll send it over 👀![]()
![]()
If cost is a concern, please get in touch with us in confidence - we never want finances to be a barrier to attending and payment plans are available![]()
![]()
We can't wait to see you there! 🙌![]()
![]()
#charcotmarietoothdisease #activityweekend #cmtuk #cmtkids
Our CMT Kids Weekend is back for 2026! 🙌![]()
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This action-packed residential weekend is a chance to try new accessible activities, meet others who understand life with CMT, challenge yourself, and create memories that will last a lifetime 💙![]()
![]()
📍 Bendrigg Trust, Lake District![]()
![]()
📅 Friday 23rd October (from 4pm) to Monday 26th October (10am)![]()
![]()
👥 11–17 year olds![]()
![]()
💷 Thanks to our fundraising efforts, the weekend is heavily subsidised and costs a minimum donation of £100 per person![]()
![]()
This includes:![]()
✅ Three nights' accommodation![]()
✅ All meals throughout the weekend![]()
✅ All activities and instructors![]()
✅ All equipment required![]()
![]()
⏰ Booking opens on Monday 15th June at 11am![]()
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Whether you're returning for another year or thinking about joining us for the first time, we'd love to see you there!![]()
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Places are limited and allocated on a first-come, first-served basis, so check your emails, or drop us a message for your registration form 👀![]()
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We can't wait for another amazing C#charcotmarietoothdiseasec#activityweekenda#cmtukt#cmtkidskend #cmtuk #cmtkids
This time last week, we were busy enjoying our family day out at the Yorkshire Wildlife Park 🙌![]()
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A huge thank you to everyone who came along!![]()
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We had a fantastic day making new friends, meeting the animals, exploring the park, and sharing some brilliant conversations 🥳![]()
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We can't wait for the next one!#charcotmarietoothdiseases#cmtukc#cmtkidstkids
Discover more
About CMTUK
Discover who we are, what CMTUK stands for, and how we support people living with Charcot-Marie-Tooth across the UK.
Research
Explore the latest CMT research, clinical trials, and how we’re driving progress toward better treatments and understanding.
Members
Join our community for access to resources, support networks, events, and exclusive member benefits — all on a donation basis.
Your support keeps CMTUK going
CMTUK is a donation-based charity. We don’t receive government funding – everything we do is made possible thanks to the generosity of our community. Every pound helps us provide vital support, raise awareness, and fund research for people living with Charcot-Marie-Tooth disease.