Daniel Tanesse, Honorary President of ECMTF, 1941-2025
We are deeply saddened by the passing of Daniel Tanesse, a dedicated advocate for the CMT community, a key figure […]
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We are deeply saddened by the passing of Daniel Tanesse, a dedicated advocate for the CMT community, a key figure […]
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Congratulations to Professor Mary Reilly – professor of clinical neurology and consultant neurologist – on receiving an honorary MBE for […]
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The Annual General Meeting and Conference 2025 will be held on 10th May at Stratford Manor Hotel. Members can book […]
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A mum wants to raise awareness of a rare condition that saw her daughter in a wheelchair just nine months after she was diagnosed.
Continue ReadingSeptember is the start of awareness month for Charcot Marie Tooth, a neurological disorder that affects around 23,000 people in […]
Continue ReadingINSPIRED by her brave loved ones, a Sale swimmer has taken the plunge to raise money for a charity which […]
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Muswell Hill campaigner making film to raise awareness of rare disease Doug Sager (centre) with volunteers taking part in the […]
Continue ReadingA mother who suffers from a disorder which makes feet shrink only managed to get a diagnosis after sharing symptoms […]
Continue ReadingLast Updated: Friday 15th September, 2017