Following a great meeting with Professor Mary Reilly and some colleagues in mid November, a new Research Advisory Panel is being developed. This will consist of 10-15 medical professionals in all fields relating to CMT, including paediatric matters, two Trustees, one member of Staff and one Member.
The job of this panel will be to come up with various projects to be funded by ourselves – from simple surveys (which are still extremely important when learning about various issues) to more detailed projects. The panel will also produce a new Strategy Document. It will also distribute the small surplus that we have in our Research Fund to worthy projects.
As this work comes to fruition, this page will keep you updated with how you can help.