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Supporting people affected by Charcot-Marie-Tooth disease.

In the News

Here you can find all the press clippings, photos and web-links for the media coverage we’ve had over the past few years.

And if you see anything that we might not know about, please do send us a physical copy or a hi-res scan, or the link to karen@cmt.org.uk or post to FREEPOST CMT UNITED KINGDOM.

Charcot-Marie-Tooth disorder: I grew up being told I was lazy and useless

Charcot-Marie-Tooth disorder: I grew up being told I was lazy and useless

ROSE Brewis was an adult before she discovered she had progressive muscle-wasting disease CMT which affects thousands in the UK. As Rose Brewis grew up she became accustomed to the taunts and jeers of her classmates who branded her “lazy” and “useless”. Throughout her childhood, Rose, 31, who was born in New Zealand but now lives on the Isle of Man, found school exhausting and struggled with aRead more...

Pain and fatigue could be symptoms of THIS incurable neurological condition

Pain and fatigue could be symptoms of THIS incurable neurological condition

CHARCOT-MARIE-TOOTH is a neurological, incurable condition which can cause symptoms including uncontrollable pain and chronic fatigue. Charcot-Marie-Tooth (CMT) can also cause deformities in the lower legs and feet, leading to balance problems and falls. Professor Mary Reilly, a neurological expert, estimates around 23,000 people in the UK have Charcot-Marie-Tooth, which is named after the thrRead more...

What is Charcot-Marie-Tooth disease? Here's what you need to know

What is Charcot-Marie-Tooth disease? Here's what you need to know

During September’s Charcot-Marie-Tooth Disease Awareness Month, we look at the symptoms of this inherited neurological condition. Have you ever heard of Charcot-Marie-Tooth disease? It’s the most common inherited neuromuscular disorder, and while there are thought to be around 23,000 people in the UK living with it, few people seem to have heard of it, and many are thought to be unaware they hRead more...

A father has told of heartbreak after son inherits the same rare degenerative condition and is now struggling with mobility — aged just 5

A father has told of heartbreak after son inherits the same rare degenerative condition and is now struggling with mobility — aged just 5

A father has told of his heartbreak after his son inherited the same rare degenerative condition as him and is now struggling with mobility — aged just five Andrew Frerichs, 51 and son Calum, 5, both live with Charcot-Marie-Tooth disease (CMT), a condition which affects the dexterity of their hands and legs. But dad Andrew does not want his son to be disadvantaged by the disease, which causeRead more...

Daily Mail Snippet 27 August 2017

Daily Mail Snippet 27 August 2017

Charcot-Marie-Tooth disease (CMT) is a genetic neurological disorder that affects around 23,000 people in the UK but is little known. CMT can cause uncontrollable pain, chronic fatigue and deformities in the lower legs and feet, leading to balance problems and falls. It is currently incurable but can be managed effectively. The charity CMT UK (cmt.org.uk) advises on management, and also support wiRead more...

Mother with feet-shrinking condition only got diagnosis after going online

Mother with feet-shrinking condition only got diagnosis after going online

A mother who suffers from a disorder which makes feet shrink only managed to get a diagnosis after sharing symptoms online. Sophie Earl-Park suffers from Charcot-Marie-Tooth disease (CMT), a group of inherited disorders that damages nerves outside the brain and spine, as well as a number of other health conditions. Mrs Earl-Park said she shared a picture of “curling and arched” feet on FacebRead more...

'My daughter was in a wheelchair just nine months after being diagnosed with rare disease'

'My daughter was in a wheelchair just nine months after being diagnosed with rare disease'

A mum wants to raise awareness of a rare condition that saw her daughter in a wheelchair just nine months after she was diagnosed. Amanda Smith, 41, from Bingham, says that her daughter, Ciara Cox, underwent a dramatic deterioration after she was diagnosed with Charcot-Marie-Tooth Disease (CMT) at the age of four. The condition damages the peripheral nerves, causing muscle weakness and numbnRead more...

Charcot Marie Tooth disorder: Everything you need to know

Charcot Marie Tooth disorder: Everything you need to know

September is the start of awareness month for Charcot Marie Tooth, a neurological disorder that affects around 23,000 people in the UK. But what exactly is it? And how do you know if you have it? A charity supporting the disorder hopes that the awareness month will hopefully reach around 20,000 others in the UK who may be struggling with CMT but don’t know they have it. What is CMT disorder? Read more...

Michela takes the plunge for brighter future for her loved ones

Michela takes the plunge for brighter future for her loved ones

INSPIRED by her brave loved ones, a Sale swimmer has taken the plunge to raise money for a charity which could provide a lifeline to her unborn children. Michela Thompson, 26, has completed her first Great Manchester Swim and raised more than £400 for CMT UK, which supports people with the rare neurological condition Charcot-Marie-Tooth (CMT), including her boyfriend Steven Sumner and his mum KRead more...

Campaigner Making film to raise awareness of rare disease

Campaigner Making film to raise awareness of rare disease

Muswell Hill campaigner making film to raise awareness of rare disease Doug Sager (centre) with volunteers taking part in the film. Picture: Nigel Bewley The activist hopes to draw attention to a condition that affects 25,000 people in the UK, but many people – including health professionals – have not heard of it. Charcot-Marie-Tooth (CMT) is a genetic disease that causes gRead more...

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