Becoming a full member obvioiusly helps us, as your subscription adds to our funds, supporting our Information and Support Services, this website and much more. So, we’ll send you a pack following completion of your online form (below), but if you don’t join, we will assume you want to remain an informal “contact” and we’ll remain in touch via email for as long as you want us to be.
And if you’re any doubt as to what the difference is between the two categories, you can find out here:
Benefits of Joining us
|Access to a wide range of information on our website about CMT—from what CMT is, the genetic issues, managing and treating CMT, to information aimed at Young People|
|Added to our monthly “E-ComMenT” newsletter|
|Access to the local group network|
|Information to distribute to your medical professionals|
|Able to join an official “CMT UK” open Facebook group|
|Access to our Publications Library, giving exclusive extra content on our website, with many downloadable resources, including invaluable benefits guides.|
|Attendance at our Conferences||at cost|
|Vote on issues at the Annual General Meeting|
|Become a Trustee/Director|
|Access to our fabulous book, CMT: A Practical Guide (free to download from the Members’ area of the website)||available to purchase|
|Three editions of ComMenT per year, via post or download from this website, which includes access to an archive of previous editions spanning 10 years.|
|ComMenT by Email|
|Members’ secret Facebook Community|
|Access to our Young People’s Events and other Member-only events, such as Family Conferences, Health and Wellness Days and more.|
|Alert cards for you and additional close family members||on request|
|Good Care Guide and info pack when joining|
|15% discount in our webshop PLUS a free car sticker and silicon wristband!|
|Fundraise over £50 in any year, and get a year’s membership free|
Protection of your personal information (data) is central of everything we do. Whether you’re a Contact or a Member, your data is held securely on a database for the purposes of administering our membership scheme. We NEVER sell your details to third parties, nor do we ever indulge in “hard sell” fundraising or direct mail. Full members will receive annual reminders for their subscription (unless you’ve paid by direct debit) and certain other mailings during the course of the year – AGM paperwork, for example. Contacts will also receive an annual reminder (by email), which is necessary to reconfirm your contact details (a requirement of data protection regulations) to make sure they are up to date. The online joining form also contains a series of tick boxes for you to complete with consent options too.
Your membership pack will include a detailed consent form for other ways we may use your data on occasion.