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Supporting people affected by Charcot-Marie-Tooth disease.

Join Us!

grab5…. and together we really are stronger!

We really would like to encourage you to join us, so that we can give you the best possible help and information.  By registering, we will be gathering data on the numbers of people with CMT in the UK, which is important for research purposes.

Becoming a full member obvioiusly helps us, as your subscription adds to our funds, supporting our Information and Support Services, this website and much more.  So, we’ll send you a pack following completion of your online form (below), but if you don’t join, we will assume you want to remain an informal “contact” and we’ll remain in touch via email for as long as you want us to be.

Click here to sign up to become a Member of CMT UK

 

And if you’re any doubt as to what the difference is between the two categories, you can find out here:

 Benefits of Joining us

Contact

Member

Access to a wide range of information on our website about CMT—from what CMT is, the genetic issues, managing and treating CMT, to information aimed at Young People
Added to our monthly “E-ComMenT” newsletter
Access to the local group network
Information to distribute to your medical professionals
Able to join an official “CMT UK” open Facebook group
Access to our Publications Library, giving exclusive extra content on our website, with many downloadable resources, including invaluable benefits guides.
Attendance at our Conferences at cost
Vote on issues at the Annual General Meeting
Become a Trustee/Director
Access to our fabulous book, CMT: A Practical Guide (free to download from the Members’  area of the website)  available to purchase
Three editions of ComMenT per year, via post or download from this website, which includes access to an archive of previous editions spanning 10 years.
ComMenT by Email
Members’ secret Facebook Community
Access to our Young People’s Events and other Member-only events, such as Family Conferences, Health and Wellness Days and more.
Alert cards for you and additional close family members  on request
Good Care Guide and info pack when joining

 What we do with your data?

Protection of your personal information (data) is central of everything we do.  Whether you’re a Contact or a Member, your data is held securely on a database for the purposes of administering our membership scheme.  We NEVER sell your details to third parties, nor do we ever indulge in “hard sell” fundraising or direct mail.  Full members will receive annual reminders for their subscription (unless you’ve paid by direct debit) and certain other mailings during the course of the year – AGM paperwork or notifications of an event in your area, for example.  The online joining form also contains a series of tick boxes for you to complete with consent options too.

Your membership pack will include a detailed consent form for other ways we may use your data on occasion.

You can find more information in our Privacy Policy on this website.

 

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