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Supporting people affected by Charcot-Marie-Tooth disease.

Join Us!

grab5…. and together we really are stronger!

We really would like to encourage you to join us, so that we can give you the best possible help and information.  By registering, we will be gathering data on the numbers of people with CMT in the UK, which is important for research purposes.

Becoming a full member obvioiusly helps us, as your subscription adds to our funds, supporting our Information and Support Services, this website and much more.  But we know being disabled can be an expensive business, so if you are unable to subscribe now, why not become a Friend of CMT UK, which is free?

The only condition of becoming a friend is that you have an email address, as all communications will be done via email.

Click here to sign up to become a Member of CMT UK

Click here to become a Friend of CMT UK

In both cases, once you’ve clicked “Submit”, further information will be displayed on what happens next.


And if you’re any doubt as to what the difference is between the two categories, you can find out here:

 Benefits of Joining us



Access to a wide range of information on our website about CMT—from what CMT is, the genetic issues, managing and treating CMT, to information aimed at Young People
Added to our monthly “E-ComMenT” newsletter
Access to the local group network
Information to distribute to your medical professionals
Able to join an official “CMT UK” open Facebook group
Access to our Publications Library, giving exclusive extra content on our website, with many downloadable resources, including invaluable benefits guides.
Attendance at our Conferences at cost
Vote on issues at the Annual General Meeting
Become a Trustee/Director
Access to our fabulous book, CMT: A Practical Guide (free to download from the Members’  area of the website)  available to purchase
Three editions of ComMenT per year, via post or download from this website, which includes access to an archive of previous editions spanning 10 years.
ComMenT by Email
Members’ secret Facebook Community
Access to our Young People’s Events and other Member-only events, such as Family Conferences, Health and Wellness Days and more.
Alert cards for you and additional close family members  on request
Good Care Guide and info pack when joining
15% discount in our webshop PLUS a free car sticker and silicon wristband!
Fundraise over £50 in any year, and get a year’s membership free

What we do with your data?

Protection of your personal information (data) is central of everything we do.  Whether you’re a Friend or a Member, your data is held securely on a database for the purposes of administering our membership scheme.  We NEVER sell your details to third parties, nor do we ever indulge in “hard sell” fundraising or direct mail.  Full members will receive annual reminders for their subscription (unless you’ve paid by direct debit) and certain other mailings during the course of the year – AGM paperwork, for example. Friends will also receive an annual reminder (by email), which is necessary to reconfirm your contact details (a requirement of data protection regulations) to make sure they are up to date.

Your membership pack will include a detailed consent form for other ways we may use your data on occasion.

You can find more information in our Privacy Policy on this website.


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