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Supporting people affected by Charcot-Marie-Tooth disease.

Jeans for Genes Day

IMG_0981Nobody really knows how many children are affected by CMT in the UK, but even one child without support is too many for us.

Jeans for Genes Day is an annual fundraising campaign, organised by Genetic Disorders UK (GDUK), to raise awareness and money to transform their lives. This year’s event will take place on Friday 22nd September, and to achieve an even greater impact, GDUK are partnering with smaller genetic disorder charities like Charcot-Marie-Tooth UK, to help them spread the word, and in return, split the proceeds.

We would be delighted if your school or workplace would register to participate in this year’s Jeans for Genes Day in our name. All you have to do is sign up on the official GDUK page, choosing Charcot-Marie-Tooth UK as your partner from the drop-down list, and encourage your pupils or colleagues to wear jeans on the day in exchange for a small personal donation. Extra fundraising initiatives, such as bake sales or quizzes, are more than welcome! Once you transfer the proceeds to GDUK, they will then transfer half to us for everyone we help to sign up.

The only exception is if you’ve taken part in Jeans for Genes Day in the last three years – in which case, we would still encourage you to take part, but all of the money raised will go to GDUK.

As hundreds of schools and workplaces take part each year, this is a great way for your pupils and colleagues to join you on your journey with CMT.  For schools, it is also an opportunity for you to educate your students about the science of genetics, to promote equality of people affected by rare conditions, and to highlight the importance of charity and social responsibility.

All of the money donated to us on Jeans for Genes Day will be used to support our CMT Kids Youth section and help us make sure no child with CMT goes unsupported,

Apply for your free fundraising pack to support Charcot-Marie-Tooth UK and Genetic Disorders UK today!

Sign up here – https://www.jeansforgenesday.org/register

2nd Family Conference -14

Last years Family Conference was made possible with a grant from Genetic Disorders UK

 

 

If you have any questions about Charcot-Marie-Tooth UK or Jeans for Genes Day, please don’t hesitate to get in touch with Karen on karen@cmt.org.uk

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