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Supporting people affected by Charcot-Marie-Tooth disease.

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Your donation will make a huge difference to the lives of people with Charcot-Marie-Tooth disease all over the UK.  It’s very hard when you’re diagnosed with a condition that no one has ever heard of – people suffer from isolation, guilt, and grief at all the things they can no longer do, and what they may yet lose in the future.

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Your generosity will support our helpline staff, some of whom have personal experience of having CMT.  It will fund the publications we have available for newly diagnosed people, and for this website.  Your help will ensure our events are brought to the maximum number of people with CMT, so that they can benefit from many years of experience and knowledge, to allow them to live better with their CMT.   It allows us to spread awareness amongst the medical professionals, especially GPs, and ensure that people with CMT know what their treatment options are, and how to access those options.

Here are a just a few stories of how we have made a difference in the lives of people with CMT in the UK:

From raising awareness to providing a community for support – It was through Charcot-Marie-Tooth UK that I found one of the few surgeons in the country that could do the sort of surgery I needed – We started a year’s worth of surgery and recovery just over three months ago. Yes it’s been hard and I pray the outcome is everything we’re hoping for – Thank you Charcot-Marie-Tooth UK” – Richard


Because CMT isn’t that common, you rarely meet anyone else with it, and it really helps to be able to talk to people through Charcot-Marie-Tooth UK- and of course it’s also a great source of expertise and advice” – Francis


Without Charcot-Marie-Tooth UK I would never have come along to one of your conferences & found out about all the different aides (rocket soc’s / silicon AFO’s etc) people use and had no idea I could get ankle surgery!! It was so inspiring and great to speak to others with CMT, Thank you. The ‘impact’ on me has been positive, supportive, encouraging & helped me manage the symptoms & informed me of my options. There is no other source that does this, including GP’s” – Marie


This group is a great thing as people can come together and support one another, my husband was recently diagnosed with cmt after the birth of our first daughter. I so wish I could wave a magic wand and make him better but I know all I can do is love him and support him as best I can! I appreciate all the info Charcot-Marie-Tooth UK provides – I knew nothing of this condition and its good to know the info you provide is sound as some info on the web can be misleading!!” – Kate

You can help us continue this work – and do so much more!  We haven’t even mentioned the ultimate aim – finding a way to treat, halt or even cure Charcot-Marie-Tooth disease by funding medical research into this condition.

It’s very easy to send us a donation – use the following methods:

 Make a credit/debit card donation, or use your PayPal account:

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Send a cheque by post

Use this form – Download the form


Send a Text Message

This service is provided for us free by JustTextGiving

 In all cases, text to 70070 – followed by CMTZ01, followed by the amount – ie £5

It’s as simple as that.  You’ll receive a confirmation, and we’ll receive 100% of the funds donated, without any fuss or bother!  You will also be invited to Gift Aid your donation, which makes it even more valuable for us!



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