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Supporting people affected by Charcot-Marie-Tooth disease.


Here you can find everything you need to fundraise for Charcot-Marie-Tooth UK, and much more – from simple coin collections, to some major challenge events.

We have been astounded at the variety of imaginative ways our friends have found to raise funds for Charcot-Marie-Tooth UK; we are grateful to each and every one – without you, we would cease to exist.

Thank you

We all have a dream for the future of Charcot-Marie-Tooth UK – perhaps it’ll be funding a cure or treatment; perhaps in funding better treatment NOW, whilst that elusive cure is found; perhaps it’s funding care advisers to help with day to day living problems – whatever those dreams are, they need funds.

Gita Ramdharry at the Bournemouth Bay Marathon

Gita Ramdharry at the Bournemouth Bay Marathon

To give you an idea of the costs we incur, year in, year out –

Each information pack that we send costs approximately £5.00 to produce and post

Every day that there is someone in the office, it costs around £180 in rent and salaries (we are all part time, so that is averaged over five days per week).  And that doesn’t include all the overheads, like electricity/telephone/rates etc!

Every mailing of ComMenT costs £1000 just in postage/packaging, and £1700 to design and print (and we do that three times per year)

Every young adult attending the Young People’s Weekend costs approximately £500 each.

Every Conference costs a minimum of £10,000 (and usually a lot more, although some of that is offset by what people pay to attend).


And things that we can’t yet pay for –

Your average Clinical Trial in the UK costs £250,000 at the very least….


For personal fundraising support, email fundraising@cmt.org.uk or phone 01202 474203 and ask to speak to Karen



Giving with Confidence

Charcot-Marie-Tooth UK  is voluntarily registered with the Fundraising Regulator.  We adhere to the Fundraising Code and are accountable for our fundraising activities.

We promise to always be honest, open and accountable in our fundraising, helping you to give with confidence – check out our Fundraising Promise.

For more information, visit https://www.fundraisingregulator.org.uk/