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Supporting people affected by Charcot-Marie-Tooth disease.

Young People’s Events

cmt kids 4

What is the Young People’s Weekend?

Let them tell you in their own words:

Our Young People’s Weekends have been developed as a way to allow kids with CMT to meet, socialise, share experiences and above all, be “normal” for a while and achieve all those things that other kids take for granted.

The Background:

The Young People’s Weekend was started in 1992, when we decided to take a small party of children with CMT to Centre Parcs in Sherwood Forest for the weekend.  A grant was forthcoming from BBC Children in Need and a small number of children with CMT, together with a friend or sibling if they wanted, spent a fantastic weekend meeting other kids with CMT.

Since then, we’ve tried to do a similar weekend every other year to start with and every year for the last 10 years.  We’ve been to Butlins at Skegness; the Bendrigg Trust Centre in Kendal, Cumbria; and latterly the Calvert Trust Centre on the shores of Bassenthwaite Lake, near Keswick in the Lake District.

Latterly, the focus has been more on activity weekends – allowing kids of between 12 and 25 the chance to experience rock climbing, abseiling, zip wire, archery, canoeing and other equally scary pursuits!  Both the Calvert Trust Centres and The Bendrigg Trust are centres specifically catering to disabled clients, so they have specialist knowledge and training to ensure that the weekends are a complete success.

Photos  – From past weekends

Check our Flickr Channel – https://www.flickr.com/photos/cmtuk/sets/

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