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Supporting people affected by Charcot-Marie-Tooth disease.

Resources

This is our resource for parents and teachers of children with CMT.  We’ve included several Muscular Dystrophy Campaign leaflets here, since much of the problems that are faced by our children are applicable to children with any neuromuscular condition:

A Simple Guide to CMT  (leaflet in story form for under 10s)

Fact Sheet – A Guide for Teachers

Fact Sheet – Benefits of Exercise for Kids

For older children:

Thinking about you

 

Muscular Dystrophy Campaign’s resources for children with neuromuscular conditions:

Neuromuscular Conditions – a guide for children 5-12

(Don’t forget this guide is not specifically aimed at children with CMT, and may talk about children with conditions that are much more severe than CMT.   Don’t be alarmed, and just take from them what is appropriate for your child.)

 

CMTA’s leaflet about having children with CMT – this is from the USA, so not all the information will be relevant to us in the UK.

My Child has CMT

 

 

If you would like to suggest any further resources or information that might be useful to include here, please contact Karen at the usual address.

 

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