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Supporting people affected by Charcot-Marie-Tooth disease.

CMT Kids

CMT Kids 1

Welcome to CMT Kids!

We know that having a condition like CMT is a struggle whatever age you are, but when you’re younger, and it matters what shoes you’re wearing or how you walk, and you desperately want to fit in with the “norm”, it can be particularly tough.

CMT Kids are here to help you on the journey – here, hopefully, you’ll learn that nothing is impossible, and CMT is only a part of you, and does not define who you are.  You CAN live well, happily, and productively with CMT, and we’re here to help.


To find out more about our CMT Kids work, please contact Karin Rodgers who is our Youth Development Officer and she’ll be happy to offer the benefit of her wisdom!

You can contact Karin on karin@cmt.org.uk or by phoning 0845 241 2544cmt kids 3

Find the CMT Kids Facebook page here https://www.facebook.com/groups/cmtuk.kits/ but please be aware that this is a closed page for the kids themselves.  Parents are only allowed into this group if the child is too young to have their own Facebook profile.  Please email Karin to ask for admittance to this group.  You’ll appreciate that we do this to keep our kids protected for the rather strange people who can inhabit the internet!


To make a specific donation to the CMT Kids work, click on the donation button on the right, and make a note in the “Message to CMT” box.

To set up a specific Justgiving page for CMT Kids, please go to this link first – https://www.justgiving.com/campaigns/charity/cmt/cmtkids