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Supporting people affected by Charcot-Marie-Tooth disease.

Get Involved with Awareness

September is International Awareness Month, when all the international CMT organisations collaborate to make as large an impact as possible.

But remember, raising awareness is a year-round struggle – here are some simple ways YOU can help US make a difference.

ONE = “Like” us on Facebook at www.facebook.com/cmtuk

Because everything you like and comment on is visible to your friends, spreading our reach even further.  And if you like us there… why not join us here!  You don’t have to have CMT to be a member.  The more members we have, the better the organisation can be!

Help us spread awareness about CMT by changing your Facebook profile picture to the picture below

To make it your Facebook profile picture:

  1. Right click on the “nerve body”, select “Save Image As” and save it in a location where you can find it.
  2. Go to your Facebook Timeline and move your cursor over your current profile picture.
  3. When the “Edit Profile Picture” bar appears, click on it, and then choose “Upload Picture.”
  4. Browse to the location where you downloaded the  file and select it.

The image will take a few seconds to upload, and then you’ll be spreading awareness about CMT to anyone who visits your Facebook page!  The nerve body might encourage some useful discussion!

TWO – Give Flyers or Posters to Anyone and Everyone

Use this with basic information about CMT on it for spreading around wherever you think it will be useful.  This PDF File is set up for two flyers on one A4 sheet of paper, so that you can cut them down the middle!  (The file is actually A3, but will scale nicely to A4 when printing with Adobe Acrobat)

This  Generic Awareness poster, usable at anytime of the year is available to Download Here as a high quality .pdf.

This high quality poster is ideal for awareness month.   Download here.

THREE – Talk Talk Talk!

Just tell people about CMT, and how it affects you!  You don’t need to go into lots of technical detail – just use the Quick Facts to help!

FOUR – Raise Funds

Or perhaps you can just make a donation – it all helps.  Just think how much MORE we could do to help find a treatment or cure, if we had more resources.

There is so much more to learn, not just about new genes or the genetics of CMT, but we also need more evidence of the benefits of physiotherapy (to help get much-needed referrals), the best kinds of orthotics, more information about surgery – what kinds work, for how long, and at what age do they work best at (and I’m sure there are more questions), and also, more information about the progression of the condition, which will help with measuring success of future clinical trials.

 

FIVE – Fifteen Minutes of Fame!

Help us spread awareness to local and regional media (and who knows, maybe even national media) by giving us YOUR story to use.  Use the survey link below to submit your contact details and story to Paula Hunter, our PR Consultant, who will be in touch with you to give you more information about how you might be able to help.  Again, publicity is a year round proposition, so don’t hesitate to sign up at any time.

Contact Paula for further information – paula@cmt.org.uk  or 07739 989915

A local story REALLY makes a difference, so don’t be shy.

Click here to give your details for 2017

 

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