Hi everyone my name is Douglas Sager and I am a member of CMT UK. This charity supports people, like me, who have a diagnosis of Charcot-Marie-Tooth (CMT), a genetic, progressive disease that causes gradual deterioration of the peripheral nerves to the hands and feet.
This lack of awareness of CMT can cause problems with diagnosis, as well as misunderstandings when we are out in the community. Also funds are needed for research into this condition and an increase in awareness may mean an increase in research along with diagnosis.
Originally I had the idea of making a humorous film. However, we’ve decided to drop the “silly walks” concept which upset some with CMT and go with a really exciting, technological format to show the nerves working, and not working.
The film will be 30-90 second raise awareness film which shows the effect of CMT using innovative visual effects to depict what happens when our nerves malfunction.
<—- able-bodied person here CMT’er this end —->
The film will be visually exciting while getting the message across clearly and succinctly, ending with the positive CMT UK message “Together We Are Stronger”.
Acclaimed young film-maker Tim Partridge, who has also written the script, is ready to make the film. (See link below if you wish to see an example his previous work).
We also have the support of the National Hospital for Neurology and Neurosurgery in Queens Square.
We only need to raise another £5,000 to make the film. It would be a shame if we were to be unable to make this much needed contribution to raising awareness for want of such a relatively small amount. Please support us by making a donation on the “Just Giving” page, it would be much appreciated.