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Supporting people affected by Charcot-Marie-Tooth disease.


Charcot-Marie-Tooth UK does not manage itself, you might be surprised to learn!  The organisation is run  by four part time members of staff, together with the Board of 10 Trustees, the majority of whom have CMT themselves.

Under our Articles of Association, we can have up to 10 Trustees and skilled observers as we deem necessary.

It is always useful to have people as Trustees who have specific skills – these vary, but financial experience is always handy, and of course, fundraising is essential to any charity.

Who can stand as a Trustee?

Anyone can become a Trustee – under the new Articles of Association, you do not need to be a member.  You also do not necessarily need to have CMT to be a Trustee, although we always aim that the majority of the Board of Trustees shall have the condition.

Apart from that, you must be over 18, and subject to various restrictions – see the application form below for details.

What would I have to do?

You need to be prepared to attend up to four Trustee meetings per year (three planned for 2018), currently held in February, June and October.  Meetings are held at the Hilton Coventry, just near junction 2 of the M6. Travelling expenses and accommodation/ subsistence are paid for by the organisation.  Meetings are held over one day, starting at 10.30am and finishing by 5pm, to save costs,  with the occasional weekend meeting. We will, of course, arrange accommodation if it’s physically too far for you to travel to the meetings in a day. In addition, you are expected to attend the Annual General Meeting and Conference, and any other meetings that may be arranged.

In between times, we communicate on an almost daily basis via email.  If you don’t have access to your own computer, we will provide a basic laptop for your use, which remains the property of Charcot-Marie-Tooth UK.  We also have occasional conference calls.

If you are successful in your application, you would be elected for a term of three years, and no Trustee can serve more than two terms (ie, six years) except in exceptional circumstances.  These rules can be found in the Articles of Association.

The following Job Specification and Code of Conduct sheet will give you more of an insight as to the type of person we’re looking for

Trustee Job Description and Code of Conduct 2018

This Charity Commission publication also gives invaluable information about what is expected of a Trustee.

cc3 – The Essential Trustee

You can also find out more about the responsibilities of being a Trustee at the Charity Commission’s website here.

I’d like to apply – how do I do that?

Complete the application form found below, and send it to cmtuk@cmt.org.uk.  We will invite you to come to the next three Trustee meetings up to the next AGM – so you can get to know the Board, and they can get to know you.   In the run up to the AGM, the existing Trustees will decide if they feel that you will make a good Trustees, and if they are all in agreement, will nominate you for election at that AGM.   We do have the power, under the terms of the Articles of Association, to turn applicants down if we do not feel that you have enough to offer us.  For more information on the recruitment procedure, please go to the Governance and Finance page in this section of the website, and read the Articles of Association.

Trustees Application Form  (an editable word document)

If at any time, you would like to withdraw your application or resign from the Trustees, that is perfectly fine – we all change our minds sometimes!

Current Vacancies

There will be three vacancies as from AGM 2019.

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