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Supporting people affected by Charcot-Marie-Tooth disease.

Aids and adaptations

There are literally thousands of different gadgets and adaptations that can make living with CMT just that tiny bit easier – from the small gadgets that we sell in our webshop, to major changes to your home that can be done – changes to bathrooms and kitchens are probably some of the most common.

page 74 - 1Your occupational therapist is the main point of contact for the larger equipment you may need, and these can be funded through Disabled Facilities Grants – although these are means tested.  Ask your GP for a referral to a Community Occupational Therapist.

Smaller equipment can be bought from a huge variety of suppliers, both online and on the high street.  Do see if it’s possible to try things out before you commit yourself to purchasing something that you’re not sure about.  It’s all very well to purchase a jar opener from us online, sight unseen, but you wouldn’t want to do that with a mobility scooter, or stairlift!  Make sure you get the right advice – there are several independent charities who can give you unbiased information.

The main one of these is the Disabled Living Foundation – http://www.dlf.org.uk/

Rica also provide unbiased information on a wide range of subjects

Disability information shows like Naidex are excellent for giving you an idea of what is available, but be warned, these shows are HUGE.  Take advantage of their Shopmobility scooters, or you’ll never last the distance.

Information about upcoming shows in Birmingham, Scotland and London can be found at http://www.naidex.co.uk/

If you do end up having to fund or part-fund a piece of equipment yourself, you may be eligible for help from the Joseph Patrick Fund, part of Muscular Dystrophy UK.

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