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Supporting people affected by Charcot-Marie-Tooth disease.

About CMT

This section aims to give you all the information you could possibly need to understand Charcot-Marie-Tooth Disease, and, more importantly, to live with it successfully.

We hope that this website answers most of your questions about CMT and living with it, but it is not designed to replace the relationship between you and your health care professionals.

We have taken every care to ensure that information on this website is correct, but we cannot take responsibility for incorrect entries.  There are constant changes and developments in medicine, research, and daily living issues, such as benefits.

Watch a video of our Patron, Professor Mary Reilly, talking about CMT.

 

We’d also like to say that providing this website and the information within it isn’t free.  It takes a fair amount of money each and every day to run this organisation to provide you with the best possible support and information.

If you can donate, please use this button:

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The majority of the medical information in this section of this website was taken from CMT: A Practical Guide, written by Resonant and published in February 2015.  All medical information in that publication was written with the active involvement of:

General medical and genetic advice on CMT

  • Professor Mary Reilly, Consultant Neurologist and Honorary Senior Lecturer, Centre for Neuromuscular Disease and Dept. of Molecular Neurosciences, National Hospital for Neurology and Neurosurgery and Institute of Neurology, London.
  • Professor Mike Shy, Consultant Neurologist, University of Iowa, Iowa, USA
  • Dr David Hilton-Jones, Clinical Director of the Oxford MDC Muscle & Nerve Centre and consultant neurologist at the Radcliffe Infirmary and honorary senior lecturer in the University of Oxford.
  • Professor Angus Clarke, Consultant in Clinical Genetics, University Hospital Wales, Cardiff
  • Alison Lashwood, Clinical Nurse Specialist, Guy’s Hospital, London

Exercise and stretching

  • Dr Gita Ramdharry, Research Physiotherapist at the Institute of Neurology, University College Hospital.

Orthotics

  • Paul Charlton, Senior Orthotist at Peacocks Medical Group and Vice Chairman of the UK members section of the International Society for Prosthetics and Orthotics.

Healthy eating

  • Alice Rogers, Dietician

Surgery and anaesthetics

  • Mr Dishan Singh, Consultant Orthopaedic Surgeon, Foot and Ankle Unit, Royal National Orthopaedic Hospital, Stanmore, Middlesex.

 

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